Multiple Myeloma Insights

HealthSpotlight is now AllMyHealth

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Exciting News!
HealthSpotlight is now AllMyHealth
Wondering why we have a brand new look? We have exciting news - HealthSpotlight has merged with and rebranded as AllMyHealth.

Our shared commitment to supporting rare disease communities with trusted resources and advocacy remains as strong as ever - now under a unified name that reflects our patient-first values.

We collaborate with patient support groups to create advocacy materials and amplify community news and events.

Want to work with us? Find out more here

Exclusive Report

New Report Release: A Guide to Nutrition for Patients with Multiple Myeloma

We’re excited to share our latest in-depth report. This guide provides practical insights on how nutrition plays a vital role in multiple myeloma.

Key highlights: understanding multiple myeloma and its impact on nutrition, general dietary guidelines for people with multiple myeloma, specific nutritional needs for multiple myeloma patients, practical advice and meal planning tips (including sample meal plans and recipes).

Available in both text and audio formats - dive in today and share with your community!

View the Full Report

The report is available for free online on the AllMyHealth website.

www.allmyhealth.io/reports

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Top Stories

Latest Research

In a study by Chen et al. (2025), the relationship between thrombotic events (TEs) and survival rates in patients with newly diagnosed multiple myeloma (NDMM) was examined. The study aimed to pinpoint high-risk factors for thrombosis and assess how these events affect patient survival. The findings indicated that TEs are not only common in NDMM patients but also significantly impact their overall survival.

The research identified specific factors that increase the risk of thrombosis in these patients. However, the study did not provide specific percentages or statistical measures in the abstract. Understanding these risk factors is crucial for healthcare providers to develop better management strategies for NDMM patients, potentially improving their survival outcomes.

Community News

Myeloma UKMyeloma UKFeb 20, 2025

Last August, Kavita and Pavan Shourie organised a team of thirty to climb Mount Snowdon following Pavan's myeloma diagnosis in 2022.

Pavan was diagnosed at 38 and has since undertaken chemotherapy and a stem-cell transplant.

We spoke to Kavita about the fundraising challenge and what it meant to them, she said:

"If you talk to most myeloma patients they will tell you the first time they heard of it was at diagnosis, as was the case with Pavan. building awareness is key.

All of us went up the mountain at our own pace and to see little blobs of orange (our t-shirts) climbing up the path at different stages was so good. So many people stopped us as we were walking to ask what we were climbing for and some even donated on the spot!"

We'd like to say a huge well done and thank you to Kavita, Pavan and their group for raising funds to support our work. 🧡

If you're feeling inspired to arrange your own fundraising event, we would love to help. Get in touch here: https://brnw.ch/21wQPXw

Myeloma UK Post
Multiple Myeloma Research FoundationMultiple Myeloma Research FoundationFeb 21, 2025

In honor of #NationalCaregiversDay, we’re sending a heartfelt thank you to all the incredible caregivers who give so much of themselves to others ❤️. Annamarie’s caregiving journey began 10 years ago when her husband, JP, was diagnosed with #myeloma at 48.

Through it all, she’s learned the importance of having support and community. That’s why we created the MMRF Myeloma Mentor Program®—to ensure no one has to face this journey alone.

To schedule time with Annamarie, visit: https://ow.ly/RhMG50V2ZMY

Multiple Myeloma Research Foundation Post
International Myeloma FoundationInternational Myeloma FoundationFeb 21, 2025

What is the prognosis for #multiplemyeloma? Dr. Joseph Mikhael, Chief Medical Officer of the International Myeloma Foundation, explains the dramatic improvement in myeloma survival rates in a minute.

Upcoming Events

MAR
08
Myeloma Research Discussions HealthTree for Multiple Myeloma • Lehi, UT    In Person
APR
05
Multiple Myeloma Seminar International Myeloma Foundation • LA, CA    In Person
APR
25
Myeloma documentary screening International Myeloma Foundation • LA, CA    In Person
APR
25
Myeloma Awareness Film Festival International Myeloma Foundation • LA, CA    In Person
JUN
03
Live Q&A with Dr. Saad Usmani International Myeloma Foundation • LA, CA    Online

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